Being With

A Place for Caregivers to get strength and respite.

Under construction.

 

Amy Grant talks about caring for her father, with dementia.

Caregivers Song: written by Joseph Dziobek, in collaboration with Peter McDonough and Kevin H. Short

The Long Goodbye – John Swenson (visit his His Bands Site)

The Long Goodbye is available for purchase with all proceeds supporting Alzheimer’s.
This song is about my family’s experience with Alzheimer’s. My dad was diagnosed in 2005 and passed away on Sept 26th, 2010. I wrote the song looking through my mother’s eyes and tried to put her thoughts and experiences into words. She took care of him up until the day he passed, never wanting to put him into a nursing home. Anyone who has gone through the experience can certainly relate to this song. The Long Goodbye is available on cd baby, iTunes and Amazon.com, with 100% of the proceeds supporting Alzheimer’s research and assistance on the national and local level through the Alzheimer’s & Dementia Alliance of Wisconsin and the Alzheimer’s Foundation of America. Please consider purchasing this song so together we can help put an end to this terrible disease. More information can be found on my band’s website, http://www.cherrypie.org , or at http://www.alzwisc.org. Thank you for your time and GOD BLESS.

Resources Below:

National Caregiver Foundation. – The Foundation exists to make that journey of service more meaningful for you and more satisfying for your loved one. Caregiving for your loved ones involves much more than most people realize.

Caregiver Action Network.  – The Caregiver Action Network serves a broad spectrum of family caregivers ranging from the parents of children with special needs, to the families and friends of wounded soldiers; from a young couple dealing with a diagnosis of MS, to adult children caring for parents with Alzheimer’s disease. 

Family Caregiver Alliance – FCA is a public voice for caregivers. Our pioneering programs — information, education, services, research and advocacy — support and sustain the important work of families nationwide caring for loved ones with chronic, disabling health conditions.

Caregiver.com – For About and By Caregivers. Caregiver Media Group is a leading provider of information, support and guidance for family and professional caregivers. Publishers of  TODAY’S CAREGIVER  MAGAZINE.

AARP Caregiving Support Community – A place for caregivers to come together and discuss tips and strategies for managing appointments, finances, emotional challenges and every aspect of caring for an aging or chronically ill loved one. 

Lotsa Helping Hands – “It takes a community to care for the caregiver.” A web-based and mobile application to create your own network of family and friends to collaborate and coordinate care of a loved one, Includes a calendar, medication and vital information tracker, message board, and even a place to maintain a personal blog about your caregiving journey.

Caring Road – A support network with an open discussion board and plenty of resources and a way to connect with others who are caring for loved ones.

Male Caregiver Community – A forum for men to connect with one another and share their experiences while benefiting from the cloak of anonymity the web provides.

Cancer Support Community – An online support system called The Living Room, where caregivers join professionally-led online support chats each week, participate in the 24/7 discussion forum, or create a personal web page to keep family and friends up-to-date.

EldercareABC – A place to ask questions of both experts and fellow caregivers, find local resources, participate in free teleclasses, and get valuable information on everything from relationships to legal concerns.

Aging Care  – A support group where one can ask questions, give answers, exchange messages, and get support from other family members who understand.

Alz Connected – The Alzheimer’s Association online support community for support and to get advice from those care for loved ones with this dread disease. 

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